Scientists around the globe are working tirelessly on behalf of the VEDS community to advance research progress. And, they’re ...

Bella had a way of making people feel as though they were the only person in the world when she was talking to them,” said ...

The Marfan Foundation brings scientists from 23 countries to Barcelona to share research that may lead to new treatments and ...

The Marfan Foundation's Science in Spain brought global experts together to share research on earlier detection, risk and quality of life.

Our annual conference offers opportunities for people of all ages to learn about Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions from experts in the field, network ...

Start here to begin learning about Marfan syndrome and related conditions. We offer a range of online and in-person resources to help you get started and learn more when you are ready. Learning ...

Learning you or someone in your family has Marfan syndrome can deeply affect the quality of life of the individuals and families coping with it. That’s why it’s important to get an appropriate ...

Volunteering for The Marfan Foundation enables you to give back to the community and help create a brighter future for everyone living with Marfan syndrome and related conditions. There are many ways ...

We created a template referral letter for you to use to simplify the process when you are referring a patient to a specialist for further evaluation or testing for the diagnosis of Marfan syndrome or ...

The new guidelines were developed in collaboration with and endorsed by the American Association for Thoracic Surgery, American College of Radiology, Society of Cardiovascular Anesthesiologists, ...