News

A spontaneous hematoma reminds columnist Jennifer Lynne of the importance of taking all symptoms and bleeding seriously with hemophilia.
Hympavzi is now approved in the U.K. for the prevention of bleeds in adults and adolescents with hemophilia A or B, without ...
Columnist Joe MacDonald's son Caeleb, preparing to move into a dorm, expresses concerns about living independently for the first time.
It’s easy to forget the bad things that have happened — the things that have shattered you and left you breathless. The things that destroyed you. Time has a strange way of dulling the pain, of ...
The first hemophilia B patient in Austria has been treated with the gene therapy Hemgenix (etranacogene dezaparvovec), according to its developer, CSL Behring. “We are proud and grateful to offer ...
Kevin Leurquin is from Green Bay, Wisconsin. He enjoys spotlighting positivity through his food truck, Captain Quesadilla, ...
Approvals for Hemgenix were backed by data from the HOPE-B study that tested a single dose in people with severe hemophilia B ...
Healing isn't just physical, writes Kevin Leurquin. It's emotional and creative, too. That's where the power of optimism ...
“We are more than symptomatic carriers, we have hemophilia, too!” a large group of women shouted when I attended the first National Conference for Women with Hemophilia in November 2018. As a woman ...